Monday, October 28, 2013

Lyrics vs. technology, take 2

I needed something to rhyme with "on my own," or possibly "alone." Hmmm. How about "waiting by the phone"?

Not bad, not bad.

Oh, wait. Nobody waits by the phone anymore. Cell phones have destroyed that cliche forever. I've already lost one decent song to advances in telecommunications; no point in making another one obsolete before I've even finished it.

Back to the drawing board.

Or the tablet. Whatever.

Tuesday, October 1, 2013

Donations in Tom Hennessy's name

I happened to be on LinkedIn when an update popped up. "Thomas Hennessy has a new connection," it said. Weird. Did somebody take over his account?

At any rate, it reminded me that I still need to post names of organizations that he would have liked people to donate to. Sorry for the delay. I really haven't wanted to write this.

In alphabetical order:

Immune Dysfunction Association
This Vermont-based organization raises awareness for ME, supports and advocates for Vermonters who suffer from ME and related disorders, and facilitates the education of patients, families, healthcare providers, and primary care physicians about ME.

Invest in ME
An independent UK charity that campaigns for biomedical research into ME.

The Massachusetts CFIDS/ME & FM Association
An organization that educates healthcare providers and the general public regarding myalgic encephalomyelitis and fibromyalgia.

May 12 International Awareness Day
Tom pretty much invented ME Awareness Day.

National Advocacy Alliance for ME/CFS
A network of organizations and individual advocates who engage with government officials to promote change in federal public health policies to better meet the needs of people afflicted with ME.

National CFIDS Foundation
The Foundation's objective is to fund research to find a cause for ME, expedite treatments and eventually a cure, and provide information, education, and support to people with ME. They began a fund for Tom when he was in a nursing home not long ago.

The Nightingale Research Foundation
Founded by Dr. Byron Hyde in 1988, the NRF provides technical assistance and information to healthcare professionals and researchers to help North Americans who have or are related to somebody disabled by ME.

Pandora does advocacy for patients with neuro-endocrine-immune diseases, including ME and chronic Lyme disease.

Wisconsin Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association, Inc.
A nonprofit dedicated to assisting Wisconsin ME patients.

Thanks to Joni Comstock, Juliet, Pat, Lois Ventura, Erica Verrillo, and Victoria for contributing names of organizations.

Tom also had chronic Lyme disease—somehow I managed not to know this until after he died. If anybody knows of Lyme organizations Tom specifically endorsed, I'll post those too.