tag:blogger.com,1999:blog-8373573052582581717.post7707216520364910533..comments2023-06-06T06:49:04.399-07:00Comments on Cinder Bridge: Tuskegee #3?cinderkeyshttp://www.blogger.com/profile/01578961959712679966noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8373573052582581717.post-58023424938744499532010-10-03T21:51:07.719-07:002010-10-03T21:51:07.719-07:00Thanks, Three Chord Monty. :)
In Anon's defe...Thanks, Three Chord Monty. :)<br /><br />In Anon's defense, when I reread this post I realized I'd expressed myself badly. I've gone into more detail about what I'm skeptical about -- and what I'm not -- in a follow-up post.cinderkeyshttps://www.blogger.com/profile/01578961959712679966noreply@blogger.comtag:blogger.com,1999:blog-8373573052582581717.post-12984245259561568972010-10-03T11:35:50.875-07:002010-10-03T11:35:50.875-07:00Give Cinderkeys a break, okay? I know Hillary has ...Give Cinderkeys a break, okay? I know Hillary has been drawing comparisons to Tuskegee for awhile now. They may or may not be valid, we don't really know. She brought it up in "The Why."<br /><br />I don't think it's unreasonable for the comparison to seem paranoid. It can both seem paranoid yet still be true. Cinderkeys is a great advocate for us, one of the few that is not afflicted, one of the few not afflicted who engage in advocacy because they know what this disease is. Whereas so many carers believe the CDC propaganda.<br /><br />The language related to Tuskegee that Hilary found applied to CFS had to do with 'observing the natural progression of the disease,' or something similar. This was used in relation to the CDC's studies of 'unwell' populations in Georgia. But then one day that language simply disappeared off the web.<br /><br />Since the Science paper there are a few things in a few places referring to CFS that are no longer displayed. Probably the most notorious example would be the "Dr. Crippen" blog.<br /><br />I archived every ME/CFS-related diatribe that sadist put up before it disappeared from Google's cache.<br /><br />There are other examples, but you get the idea. Is Hillary's take on the Tuskegee/CFS comparison paranoid? Perhaps. But that doesn't matter if it's true. Amidst all the incompetence that gets in the way of a full picture of conspiracy theory, it's a bit of a stretch, but perhaps not that much. Straus convinced everyone this was not serious, a psychological condition, you know the litany. So if they did actually pull a Tuskegee on us, they wouldn't have thought they were doing anything terribly wrong. And, as we know due to the Empiric definition, they were working with an 'unwell' population, which is far from the range of Ramsay ME/Canadian Consensus.<br /><br />Meanwhile, of course, we rot.<br /><br />Certain things written about us ('functional somatic syndrome,' et al) turn out to be written in disappearing ink.<br /><br />Published papers don't.<br /><br />Cinderkeys deserves our gratitude. I do think Hillary is onto something but it's difficult to suss out.Three Chord Montynoreply@blogger.comtag:blogger.com,1999:blog-8373573052582581717.post-55845227135140305692010-10-02T18:58:35.342-07:002010-10-02T18:58:35.342-07:00A little paranoid? Guess you haven't been sick...A little paranoid? Guess you haven't been sick with ME/CFS long enough. Nor do you know much of the history of the CDC and NIH involvement in the 1980's retrovirus that was found, destroyed and no more funding for it allocated. <br />Don't trust your government. IF you are sick with ME/CFS, then WHY have you been sick and why has noone in your government done a damn thing about it until WPI stepped in? Paranoid? This is reality. Sorry...Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8373573052582581717.post-57138561600874904592010-10-02T10:10:28.656-07:002010-10-02T10:10:28.656-07:00I want to be at least a little naive and suggest t...I want to be at least a little naive and suggest they wouldn't do such a thing, not now, not after Tuskeegee. Any lack of attention to the issue I'd more ascribe to politics, lack of understanding, lack of vision, and prejudice against the possibility of such an invisible disease. I'd like to think we've learned something from the theory and practice of eugenics.DeppityBobhttps://www.blogger.com/profile/03739975299662947480noreply@blogger.com