An invisible illness is one that isn't readily apparent to the people who don't have it. Two factors contribute to a disease's invisibility:
- No obvious signs. Sufferers don't use a wheelchair or crutches, don't exhibit hideous rashes or scarring, and generally don't "look sick."
- Symptoms go underground. Due to the illness, sufferers often can't leave the house. When they do, it's on a relatively good day, when they're feeling better. The friends and family who see them on those good days assume, wrongly, that the sick person always looks and functions that well.
As
National Invisible Chronic Illness Awareness Week draws to a close, I'm posting "Good Days," a song I wrote about dealing with the misconceptions attached to a good days/bad days disease. Ron the Drummer and I recorded this live in his living room. You may need to turn the volume all the way up if you're listening on tiny laptop speakers.
Lyrics are below. Enjoy!
8 comments:
Amen, Sister! I had one doctor tell me that if I could get to his office (4 blocks away) I could get to a job. Never could convince him that I slept in my clothes (because getting dressed took so much out of me) so I could get up, go directly to his office, and 15 minutes later go home and collapse for 2 or 3 days. Oh, yeah, there are jobs that let you come in for 15 minutes at a time twice a week.
Love it!
Hi, Susan -
A friend directed me to your blog, and I'm so glad she did!
I've just listened to all of the songs you have posted here and really enjoyed them. I like your musical style, and the lyrics so perfectly express what it's like to live with CFS!
I happen to be badly crashed today, and Quicksand really hit home with me - in fact, our ancient, broken-down couch physically resembles quicksand!
Thanks for your wonderful music. I posted a link from my own blog:
www.livewithcfs.blogspot.com
Sue
Thanks for the kind words, all. Thanks for the link, Sue.
Looking forward to someday getting this recorded professionally. :)
That song expresses it perfectly! Love the music, love the lyrics, love the song! That's it exactly! Thanks for saying what I was thinking and saying it with insouciance! Well done!
Thank you! Insouciance is what I was going for. :)
Thank you for writing this! Perfectly positioned, no apologies.
well put thank you.
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