Sunday, August 21, 2011

Live from FireFest

The awesome Frank Ramos likes to go to music events around Tucson and videorecord the performers. Here are a couple of songs he captured from last night's gig.

"The Line." You may appreciate this if you've ever spent a lot of time in the company of an addict, particularly one whose fortunes are tied to yours.

Our ME/CFS advocacy song. Frank was only able to get the last few words of my introductory spiel, so here's a caption:

I wrote this song about somebody living with myalgic encephalomyelitis, a disease that causes chronic pain, crushing exhaustion, and in many cases, early death. If you're wondering why you've never heard of myalgic encephalomyelitis, that's probably because it's more commonly known as "chronic fatigue syndrome," which is a stupid name for a serious disease. The song is called "Everybody Knows About Me."

Thanks, Frank!