Tucson's #MillionsMissing event happened on Saturday, May 11, at Monterey Court.
Sonya Heller Ivey talked about her own experiences with the disease. She's recovered to the extent that she can occasionally leave the house, but she had to sit to speak.
Amber Frame organized the event for the second year in a row. She has a family member with the disease.
So that was ME/CFS Awareness day. Today is Severe ME Day, which honors the most severely affected people. Patients with severe ME often spend their days in darkened rooms so that they can't be hurt by light, sound, or touch. They may not be able to stand, dress themselves, bathe themselves ...
Severe ME Day is a good day to turn awareness into action and donate to the Open Medicine Foundation, whose mission is to find a cure, and #MEAction, which educates the population about the disease and advocates for individuals who have it.