Wednesday, May 12, 2010

ME/CFS Awareness Day: A video and a place to donate

ME/CFS Awareness Day is today. If you've been reading this blog regularly, you most likely know what ME/CFS is and why we need to raise awareness for it. If not, here's the short version.

Many people know ME/CFS by the name "chronic fatigue syndrome," and not coincidentally, many people think the disease just makes you really tired. Nope. In reality, the disease involves constant pain, crushing exhaustion, neurological problems, and early death.

This video explains it better than I do. Click play. I'll wait.

Feel like taking some action?
  1. Donate to the Whittemore Peterson Institute for Neuro-Immune Disease.

    The Whittemore Peterson Institute discovered more about this disease in the past couple of years than the CDC has in over two decades. They have done this with no federal funding, and they need our support to continue. Donate, donate, donate.

  2. Post the ME/CFS Phoenix Rising Video link on Facebook, Twitter, or wherever you hang out online:

    Write a tagline in your status update that will make your friends curious enough to click and watch.

  3. Send the ME/CFS Phoenix Rising Video link to people you know:

    Which people? People who are sympathetic to the cause will appreciate it. People who think the disease is just tiredness or hypochondria need to see it even more. For best results, send the link to one friend at a time rather than blasting everyone in your mailing list at once. They're less likely to discard it if it's intended specifically for them.

  4. Encourage people to donate to WPI after they've seen the video.

Thanks for listening. Now go out and spread the word.


Jannie Funster said...

That video really brings home the urgency and importance of ME / CFS getting the awareness it deserves!

cinderkeys said...

I'm glad. Now let's just hope it helps!

greenwords said...

Fantastic post and great call to action! I could learn something from how concise you are...

Anonymous said...

wonderful video and song. this is a powerful blog and i hope the message spreads like wildfire

johnz said...

I was suffer with CFIDS disease 17 years, and was time when I was completely paralysed, I tested many treatments, but now I feel good, I use real treatment on web